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Clara Spangler
Registered Member

Date Joined Aug 2004
Total Posts : 1

Posted 8/30/2004 4:38 PM (GMT -5)

Could anyone offer any help for nose bleeds in a person that was diagnosed with myelofibrosis about 15 years ago and has been enjoying pretty good health using natural herbs, no prescription meds, but is experiencing severe nose bleeds.

Any information would be greatly appreciated.

leppert
Registered Member

Date Joined Nov 2001
Total Posts : 537

Posted 8/31/2004 11:52 AM (GMT -5)

The first thing I think about with bleeding of any sort is vitamin K and bioflavonoids.

If he were my loved one, I think the first thing I'd do is supplement with the Life Extension Super Booster (the Mix too of course) with some digestive enzymes too and vitamin C with bioflavonoids. Probably some extra bioflavonoids, even if using Ester C. I think Dr. Mercola would recommend his berry supplement.

The tiny capillaries in the nose are fragile and I personally think that for people who don't get enough fruits and veggies, or cannot digest them, these vessels break easily.

Because of the type of disease he has, I'm wondering if his vitamin D has been tested. He probably needs to ease into some good sunshine and some codliver oil as well. Check out the www.mercola.com site and do a search for vitamin D testing. My guess is that he is really low in vitamin D and iodine.

You can check your friend's iodine by painting a silver dollar size patch of iodine on his skin where it won't get rubbed off. My guess is that it will be sucked up and disappear within an hour or two (should be there 12+ hours). Check out Dr. Wright's Tahoma clinic and read about supplementing with SSKI. Fibrous disease processes are partly due to iodine deficiency.

The other thing I'd help my loved one do, is a complete cleanse. I personally solved a fibrous disease process doing this. My problem was severe fibrocystic breast disease. Also a couple fibroid tumors in my uterus that I keep in check with iodine, essential fatty acids (Omega 3 & borage oil) and annual cleansings.

You can check out the www.curezone.com site and read about a number of different methods. The one that saved me from a mastectomy was the Dr. Richard Schulze system. Read about his treatment protocols at www.800herbdoc.com .

Undoubtedly the liver and spleen are riddled with fibrous scar tissue if he has been fighting this for 15 years. I'd go real easy on the cleanse and do the detox tea and kidney/bladder tea for months before going on to the liver/gallbladder flush.

You may want to go to the www.doctoryourself.com web site and read about the vitamin C "titration" therapy. I think that easing into this along with the other things will make a tremendous difference in his life.

tonya
Registered Member

Date Joined Sep 2004
Total Posts : 9

Posted 9/17/2004 11:03 AM (GMT -5)

i am new to this site so i hope i am posting this correctly, my father was diagnosed with mylofibrosis 2 years ago. he was taking a medication called hydroxia however it quit working as far as keeping his hemoglobin up, he then was using the procrit shots which also did no good. last year his spleen was removed weighing 6 1/2 pounds. since last year he has been taking only vitamins and coral calcium supreme, unfortanatly this week his hemoglobin has dropped to 6.2 and he is also having nose bleeds and cramps in his legs. he is scheduled for a transfusion this friday, although he does not want to have one we are told it is the only thing left to to try. which is why im writing in this site now. i would like to hear from the lady who wrote in here about a loved one who is treating with herbs for the last 15 years. so if you read this i sure hope you will reply. thanks Tonya

Mother Margaret
Registered Member

Date Joined Jan 2005
Total Posts : 323

Posted 1/27/2005 12:56 PM (GMT -5)

Nosebleeds?

And the father with spleen removed and dropping hemoglobin.

Have you all checked for whether or not there is undiagnosed acquired autoimmune hemolytic anemia? It does this and it causes the 'gulf war syndrome' the CFS and the CFIDS from what I can tell.

It's harm is unrecognised and I suspect it is THE FATIGUE doctors are looking for.

I believe the most help will be found in checking what is wrong with the bone marrow as red blood cells and all the immune cells are made in the bone marrow. (If other organs with stem cells make the red blood cells, there is risk for paralysis)

I often hear of swollen and ulcerated organs like gall bladder, spleen, pancreas. I think there is harm to the pituitary and all the endocrine system.

The chemical is 2-butoxyethanol. So if you are being exposed to that still; stop exposure immediately.

Again, if you can stop any exposure to this chemical AND get help for the autoimmune issues, there would like the most help.

Mother Margaret
Registered Member

Date Joined Jan 2005
Total Posts : 323

Posted 1/28/2005 2:03 PM (GMT -5)

"any help for nose bleeds in a person that was diagnosed with myelofibrosis?"

I didn't comment on severe nosebleeds

I didn't know what myelofibrosis was until I looked it up yesterday, but Tonya's symptoms that she shared, I did recognize as being part of the pattern of 2-butoxyethanol poisoning. Especially the enlarged spleen which was removed. I hear of that with the Exxon Valdez oil spill cleanup workers. Robin of EVOS had her spleen and pancreas removed. She was being seen at Mayo Clinic and they didn't understand all her ailments. With this group I think the enlarged spleen shows up from red blood cells dying off prematurely: autoimmune hemolytic anemia - the fatigue doctors are looking for in 'gulf war syndrome' CFS, CFIDS groups.

But I did recognize NOSEBLEEDS

The 2-butoxyethanol chemical 'defats' the skin. Sometimes it is one of the few warnings given on products (EPA doesn't require that a product state the chemical is present, if warnings are given as to how to use properly)

Anyway, one of the Exxon Valdez oil spill cleanup workers shared with me that about 12 years ofter his work as a 'bioremediation' worker he woke up in the middle of the night with a gushing nosebleed. These are the kind of nosebleeds that just don't stop. It makes you think of your mortality, that's for sure. And this is not the first time that group shared this ailment with me, either.

The reason the USA can't find the real cause of gulf war syndrome, in my opinion, is because they don't recognize how harmful this 2-butoxyethanol is; and because the chemical companies, such as those who make their weapon cleaners, don't state the ingredient, either

I am not a medical person, I have no medical background; however, I have spent a lot of time studying this chemical and suspect it for everything from the loss of sperm and 'maleness' our men should have to multiple cancers and everything in between.

Here is a list of some research on it; what this chemical does is well-studied and well-known, but the 'translation' into BE CAREFUL EVERYONE didn't take.

Post Edited By Moderator (DDye) : 1/28/2005 1:09:43 PM (GMT-5)

leppert
Registered Member

Date Joined Nov 2001
Total Posts : 537

Posted 1/31/2005 6:40 PM (GMT -5)

So Mother Margaret, you have told us on several threads about the symptoms and what is causing them. I have been waiting to find out what one does once this is determined. What does one do to antidote diethylene glycol monobutyl ether, and 2-butoxyethanol ? How does one detox or eliminate this stuff?

Mother Margaret
Registered Member

Date Joined Jan 2005
Total Posts : 323

Posted 2/9/2005 1:08 PM (GMT -5)

That is a very good question.

At first all I hoped for was an accurate diagnosis.

We are talking about this chemical exposure.

http://home.gci.net/~blessing/pages/discoveries.htm#2-b

Doctors must look beyond the basic blood info and actually test for autoimmune hemolytic anemia when they don't think they should be.

check these links at page bottom.

I do believe there is a cure.

I believe that it has to do with stopping the autoimmune function going on with the immune system

You can't detox for it, I don't think; I call it the tornado chemical.

The chemical experts say that it leaves the body in 24-48 hours.

Well, if that be true, I'm not sure; but if so, it sure does leave behind a lot of biological harm. Someone said the n-butyl ethers fool the biological system and cause havock that way.

I don't think drug medications will be helpful, except in a limited way, because people who have had too much of some kind of chemical, are harmed by giving more chemical. (An axiom of truth, I think)

OK, Look at this summary of this info -

& the thread on immune system not working just above it

Why I learned about 2-butoxyethanol

Post Edited (Mother Margaret) : 2/10/2005 6:53:53 AM (GMT-5)

winnie
Registered Member

Date Joined Feb 2005
Total Posts : 2

Posted 3/1/2005 3:26 PM (GMT -5)

Mmy husband was diagnosed with myelofibrosis three years ago. He also had breast cancer. Ssurgery was done three years also. After breast cancer two years he was doing okay. Last year he was getting sicker. His spleen is swollen, RBC is low. Last month he started to get procrit shot and Dr. put him with Thelamid. He lost a lot of weight. He has gout because of this problem. I am so helpless. Has any one had any experience like this? How can he gain some weight and get more energy? He is extremely weak.

Mother Margaret
Registered Member

Date Joined Jan 2005
Total Posts : 323

Posted 3/7/2005 2:12 PM (GMT -5)

This sounds very much like what the harm of 2-butoxyethanol would be.

With the swollen spleen, the lowering RBC ... procrit shots to help make the red blood cells.

May I ask when THE FATIGUE hit and what he was doing then?

This n-butyl ether is the cause of a lot of harm, but it is not a fully recognized problem .

Lot's of things besides it, get blamed since the 1930s.

Many cancers are caused by it, in my opinion, but it seldom gets blamed for any thing, by medical science in the US.

I hope lef.org will help with a study of it. The primary problem is an AUTOIMMUNE problem. Stop this and avoid any exposure to 2-butoxyethanol type chemical and you will have helped your husband (& you, too).

This chemical is more probably the cause of harm to the Vietnam vet, too, than Dioxin which gets the 'credit' for it.

Does your husband also have horrible headaches, sleeplessness, difficulty concentrating, DEPRESSION? Extreme irritability even before this diagnosis?

Mother Margaret
Registered Member

Date Joined Jan 2005
Total Posts : 323

Posted 3/8/2005 3:54 PM (GMT -5)

winnie said...
My husband was diagnosed with myelofibrosis three years ago. He also had breast cancer. Surgery was done three years also. After breast cancer two years he was doing okay. Last year he was getting sicker. His spleen is swollen, RBC is low. Last month he started to get procrit shot and Dr. put him with Thelamid. He lost a lot of weight. He has gout because of this problem. I am so helpless. Has any one had any experience like this? How can he gain some weight and get more energy? He is extremely weak.

There are several things you share that indicate he could be exposed to 2-butoxyethanol. What was he doing when he started feeling so tired? Or did he have any flu-like symptoms, but it wasn't the flu?

Could he still be doing something that would expose him to this chemical? If so, he must STOP the exposure.

Again, if so, his immune system is attacking himself. It is an autoimmune issue. Ask the doctor if the red blood cells are immature and if there is blood in urine.

With enlarged spleen, I suspect a current exposure to a chemical that could have started everything in the first place.

Do not use anything that is an aerosol spray. Does he remember a time when his eyes burned & hurt and his urine turned dark & a HORRIBLE FATIGUE?

Does he have some of these symptoms, too

Doctors do not think about this chemical exposure and many, many people have it. It can show up in lots of seemingly rare things; but looked at as a whole, they are more common than believed.

Health issues are varied, so are there any other things on this list?

Ask him all of these questions & take the list to the doctor ... he should have several of these things going on prior to the cancer starting up. You need to understand this whole picture, if so, and so do the doctors.

I would suspect weight loss being from concerns with the liver, but of course it might be something else. I just know that this chemical also directly targets the liver and kidneys and any gland it wants to; but the bone marrow is the first thing that is damaged: all immune cells are made in the bone marrow, and they become autoimmune; and the red blood cells are the part of the body that they start destroying: (first and ALWAYS) this will be the biomarkers, if you please; the common denominator.

If the red blood cells are immature, then white blood counts are reading too high, liver counts are reading higher than they should. Have the doctor check the red blood cells; because if they are immature, other tests have to be adjusted. The computer version will be inaccurate.

PS, I have also heard a man share with me that he had male breast cancer. Because the list of harm that 2-butoxyethanol does, and a list that said, "and other maternal effects" I was wondering if some of the breast cancers are caused by this chemical. (Of course most of the time people think of breast cancer as a female issue)

I have a friend in IL who has been getting procrit shots for her low red blood cell counts. We discussed her favorite cleaning compound and it was Lysol Tub 'n Tile. That alone could have caused her aching joints, fatigue, low RBC, recent high blood pressure, high blood sugar. Right now doctor doesn't know what to do. She was told to just go to ER, they couldn't work her in ... She is not well. Anyone know a doctor interested in this that she could get to? She lives in Alton, IL

Why I learned about 2-butoxyethanol

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