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moobug
Registered Member

Date Joined Nov 2004
Total Posts : 3

Posted 11/4/2004 12:37 PM (GMT -5)

Can anyone share successful treatment for fibromyalgia? Any relative, recent research articles? Thank you Moobug

rosezs
Registered Member

Date Joined Jul 2004
Total Posts : 34

Posted 11/8/2004 2:13 PM (GMT -5)

I just read an interesting article by Moton Walker, DPM which was written in 1999 and quotes a statement of Carl Hawkins, DC of Salt Lake City, Utah that his experience with bovine colostrum "has been quite phenomenal when it comes to fibromyalgia cases". Dr. Hawkins says that within two to three weeks his patient's fatigue, muscle and joint pains and other symptoms were all gone. Swanson's has a product called High Ig Colostrum containing ColostruMune, which is a product of Sterling Technology. They give a dosage of two capsules two times a day. Another part of the article says take four capsules on an empty stomach as a therapeutic dose and reduce thereafter to one or two capsuls twice a day. You need to be careful to get a safe clean product and the one from Swansons sounds good. Colostrum is good for many things. It boosts the immune system.
I sincerely hope this helps.
rosezs

out there
Registered Member

Date Joined Nov 2002
Total Posts : 37

Posted 11/8/2004 2:15 PM (GMT -5)

Dear Moobug,

I've been suffering with fibro since the late eighties. What has worked for me is grapeseed extract 320 mg/day in divided doses, MSM 4000 mg/day in divided doses, vitamin c 4000 mg/day in divided doses, a good high quality multiple vitamin, and liquid chlorophyll 1 tbsp in water, yielding 100 mg chlorophyll. (I take more than this but I feel that these things have helped the most.) Also VERY IMPORTANT low impact areobic exercise, and weight training. Make sure that the weights are not more than you can handle, be sensible, start slow and make sure you talk to your doctor before doing any of this. When I have one of those miserable nights sleeping I take 5 mg. Ambien. I still don't sleep as well as I should but I'm a lot better than I used to be and it seems like I can handle the lack of sleep better. It has been my experience in talking to different people with fibro that what works for one person may not work for someone else. I hope this helps.

Out There

Post Edited By Moderator (DDye) : 11/8/2004 6:18:06 PM GMT

Trent
Registered Member

Date Joined Jul 2004
Total Posts : 8

Posted 12/8/2004 5:07 PM (GMT -5)

Good results for fibromyalgia has been a treatment called "Bowen Therapy". It is different and better than acupressure or massage. It somehow helps expel toxins among other thing. Six or more treatment are required which is a lot for Bowen (considering how stubborn FM is). Do a search of Bowen Therapy to find a practitioner.
Good Luck

Fraser
Registered Member

Date Joined Jul 2004
Total Posts : 4

Posted 12/21/2004 1:00 PM (GMT -5)

University of Virginia researchers published results from one of the first clinical research studies conducted on magnet therapy for pain in today's issue of the Journal of Alternative and Complementary Medicine. Although the results of the study were inconclusive, magnet therapy reduced fibromyalgia pain intensity enough in one group of study participants to be "clinically meaningful," the researchers said.>>

The study was conducted with partial support from a grant from the National Institutes of Health Center for Complementary and Alternative Medicine.>>

Three measures of pain were used: functional status reported by study participants on a standardized fibromyalgia questionnaire used nationwide, number of tender points on the body and pain intensity ratings. Data were compiled for 94 fibromyalgia patients randomly divided into four groups. One control group received sham pads containing magnets that had been demagnetized through heat processing. The second control group received only their usual treatment for fibromyalgia. Two other groups received active magnetic pads: one group used Pad A, which provided whole-body exposure to a low, uniformly static magnetic field of negative polarity. The other used Pad B, which exposed subjects to a low static magnetic field that varied spatially and in polarity. The subjects were treated and tracked for six months.>>

"When we compared the groups, we did not find significant statistical differences in most of the outcome measures," said Ann Gill Taylor, R.N., Ed.D., co-investigator for the study, professor of nursing and director and principal investigator of the Center for Study of Complementary and Alternative Therapies at the University of Virginia. "However, we did find a statistically significant difference in pain intensity reduction for one of the active magnet pad groups. The two groups that slept on pads with active magnets generally showed the greatest improvements in outcome scores of pain intensity level, number of tender points on the body and functional status after six months.">>

Pad A group exhibited a consistent improvement across all four outcome measures at three and six months. Pad B group showed an improvement in all outcomes at three months, and these improved scores were maintained at six months. The sham pad group and the group receiving only usual care did not exhibit the same improvements.>>

The magnetic fields of the mattresses were tested thoroughly to quantify how much exposure, or dosage, study participants were receiving, the researchers said.>>

"Finding any positive results in the groups using the magnets was surprising, given how little we know about how magnets work to reduce pain," said the study's principal investigator Dr. Alan P. Alfano, assistant professor of physical medicine and rehabilitation and medical director of the U.Va. HealthSouth Rehabilitation Hospital. "The results tell us maybe this therapy works, and that maybe more research is justified. You can't draw final conclusions from only one study.">>

"To our knowledge, no other studies on magnet therapy have been done in as rigorous a clinical setting as U.Va., and this study was the largest conducted so far," Taylor said. "Nevertheless, larger studies are needed to find clear answers about magnets' safety and efficacy in treating pain.">>

"Fibromyalgia is a common rheumatological condition for which there is no generally effective treatment," Alfano said. "People who have fibromyalgia try everything and magnetic mattress pads are one of the most popular complementary products they try. We did this study because we hoped to provide some useful information for them.>>

"In the past decade, people in this country have been using magnets for everything from tennis elbow to carpal tunnel syndrome. They want to do something for their pain that doesn't involve medication or injections, and magnets seem relatively benign. But people don't know how to evaluate magnetic products when considering what to buy. There are no standards for magnets yet. So researchers need to find out what dosage, field strength and period of exposure is proper, what side effects may occur and what conditions benefit most," Alfano said.>>

Two other basic science laboratory studies currently underway at U.Va. are investigating the effects of pulsed and static magnetic fields on neural processes and functions and the effects of magnetic fields on microvascular capillary blood flow. If You want more information reguarding how to naturally treat Fibromyalgia, please don't hesitate to ask , bye for now .

rosezs
Registered Member

Date Joined Jul 2004
Total Posts : 34

Posted 4/1/2005 1:15 PM (GMT -5)

I don't want to believe what I've been finding on another forum I joined, and the Net, but it is pretty well documented that fibromyalgia, MS, chronic fatigue syndrome and autoimmune diseases in general are caused by mycoplasma. These articles describe how the government created these diseases in developing biological weapons. The links can describe it better than I can.

http://www.nexusmagazine.com/articles/mycoplasma.html

http://www.immed.org/publications/infectious_disease/acfs99.html

I have autoimmune problems myself and there's MS and lupus in my family, so I'm not too happy about this!! rosezs

Anne Hillebrand
Registered Member

Date Joined Apr 2005
Total Posts : 12

Posted 4/26/2005 12:55 PM (GMT -5)

Fibromyalgia - Treatment Update

We are reversing all symptoms of severe fibromyalgia using generic prescription meds and some necessary tricks and tips.

I developed the treatment method, was the first person on it, and host a free web site www.FibroFix.com that tells all that we have learned.

We discovered that the natural flow of hyaluronan throughout the body can be disrupted. This malfunction is the cause of all symptoms of fibromyalgia. Not the cause of the syndrome, but of the *symptoms*.

The treatment we are using is generic prescription meds with some essential tricks and tips to make it all work. Not a cure and not remission, just a daily treatment that works.

There is nothing for sale, no blaring testimonials, no donations accepted and all details are provided free of charge and public domain. It is a gift from my husband and me to those who still suffer. We are grateful for what we have received.

As long as I stay on treatment, I am pain free without pain pills, sleeping well, strong, flexible, clever and happy with my life back.

There are hundreds and hundreds of people now using this method. Many have been seen in my Internal Med doc's local practice here in Orlando. Many others were helped over the internet via the web site, email and phone.

Dr. Thomas D. Harris, M.D. Internal Medicine Specialist, Orlando, FL

407-351-9696 is my PCP.

He listened right from the start, and now treats all Fibros based on the model of what happened with me. They are all pain free without needing pain pills.

Like my husband and me, he has not exploited what we have learned. He just wants to help people get well.

I am also blessed to have had the ear, care and advice of Dr. R. Douglas Stiff, MD. FACOG, Gyne, Branson, MO; ARNP Janet Fundaro, OKC,OK, and now Samuel Pratt, R.Ph. a nationally-known and innovative compounding pharmacist in Altamonte Springs, FL; and also Katherine Poehlmann, PhD in Health Science, Torrance, CA. (another medical maverick - she wrote Rheumatoid Arthritis - The Infection Connection after reversing her own RA.).

During the first two years on this treatment, something else gradually happened. The chronically bulged discs in my back returned to normal shape and are firm again. The cartilage in the joint of my right knee ( a joint that did not work
for 20 years ) grew back to normal thickness. It moves quietly, smoothly and is pain free.

My teeth, which kept splitting, are stable again. Monthly periods returned - after 25 years.

For 20 years I had about a 15 to 20% intellectual deficit. I have back my good mind and can feel my friends again.

When you read all the other body systems that were affected, then restored, you will realize that knowing about this malfunction and how to reverse it will be important to consider on most medical research.

Just please read every word of the site.

I am glad to answer questions for doctors, researchers, patients or the media.

www.FibroFix.com/discoveries.html tells what we know to this point.

www.FibroFix.com/Testimony.html gives the best overview of what happened, how and when. It also tells about the change in my faith, about fibromyalgia, and about family and friends who waited 20 years for me to come back to them
intellectually and emotionally because of this illness - and never gave up.

Anne Hillebrand Orlando, FL

annehillebrand@bellsouth.net

407-925-4139

Paulthomas
Registered Member

Date Joined Apr 2005
Total Posts : 6

Posted 4/28/2005 3:22 PM (GMT -5)

Attention! For all who want relief from fibromyalgia as well as just making you a lot healthier, check out this amazing product at this website: http://www.life-enthusiast.com/amino/index.htm

I am an athlete who has had great results in healing injuries with this product. This disease is a chronic inflammation of bodily tissues because of your body's inabilty to heal properly from insufficient protien metabolism. Even your immune system is thrown out of balance- thats why its considered a type of autoimmune disease.

Please check this out! I think its one of the best & most important health supplements in the industry!!!!!

(Remember diet and exercise are crucial!) Note: Bovine Colostrum is also a great supplement to take!)

PaulThomas

TheAnswer
Registered Member

Date Joined Sep 2005
Total Posts : 12

Posted 9/25/2005 10:48 AM (GMT -5)

Some of what these people offer will definitely help but do they know where fibro comes from? I do!! Toxins and biotoxins that cause inflammation. Read the article below from the first person in the world to cure people with biotoxin illnesses.

http://www.chronicneurotoxins.com/learnmore/fibromyalgia.cfm

nutrovita
Registered Member

Date Joined Mar 2006
Total Posts : 2

Posted 4/4/2006 11:17 AM (GMT -5)

Colostrum

For centuries Colostrum has been considered a potent health aid all over the world. It's a universally accepted natural health food, usually without side effects. Over the years, researches have proven the outstanding health benefits offered by quality Colostrum. No matter the age, gender, or even species, colostrum can revitalize the health of all living beings.

http://www.nutrovita.com/info/Colostrum.htm

Health Ctr.
Registered Member

Date Joined Dec 2005
Total Posts : 56

Posted 4/5/2006 1:02 PM (GMT -5)

You are right, TheAnswer. Environmental Toxins are behind almost every disease. But who you are talking about was not the first. Dr. Bill Rea in his 70's now at Environmental Health Center-Dallas, Author of Chemical Sensitivity, Volumes 1-4 and more www.AEHF.com , Dr. Allan Lieberman in North Charleston, S.C. www.COEM.com & Dr. Sherry A. Rogers, Northeast Center for Environmental Medicine in Syracuse, N.Y., author of Tired or Toxic, Depression CURED at Last!, Detoxify or Die, The High Blood Pressure HOAX! & others www.prestigepublishing.com , these Drs have been at the forefront for over 30 years in CURING DISEASE, not treating it. Long Life & Happiness

toxfree
Registered Member

Date Joined Jun 2006
Total Posts : 6

Posted 6/22/2006 1:36 PM (GMT -5)

For all with FM/CFS/MCS, 80% of whom are female, I suggest studying "xenoestrogens" and estrogen dominance. Males should also notice this material, these chemicals are everywhere, and damage is not gender (or species) specific.

moobug
Registered Member

Date Joined Nov 2004
Total Posts : 3

Posted 7/3/2006 11:25 AM (GMT -5)

Since I posted this original question I have done loads of research and tried lots of therapies, nutritional supplements and I have finally found an answer to my problem.

Unhealthy sleep patterns is definitely related to the fibromyalgia pain. I have medication to use when I have several nights of sleep disturbances. This usually puts me back on track.

Postively the most help has come from the 40 xanthones that are found in the fruit of the mangosteen fruit. This fruit grows in SouthEast Asia. It has been used for years as part of their medical folklore and there are numberous medical research to back up the effects.

I purchase it in the form of juice known as XanGo. (xanthones + mangosteen)My pastor's wife uses it for her arthritic pain. I purchase it orginally from the Amish Country Store but have since joined the XanGo network marketing corporation so I can receive it at wholesale costs.

I use 2 oz. of the juice with breakfast and dinner and my fibromyalgia pain goes away. It has a half life in the body of about 5 hours so it is necessary to replenish the xanthones.

I attended a recent seminar by Dr. Amod Tootla, he explains the chemical reaction this way: the xanthone molecule has side sections that break off and recombine at the cellular level to replace the stolen electrons that free radicals have robbed from the cell. Replace the electrons placing the cell in balance again and therefore promotes healing.

If you desire to know more about this wonderful product you can email me at moobug@glccomputers.com.

I hope this will help some others who are still suffering from the pain of fibromyalgia.

Mother Margaret
Registered Member

Date Joined Jan 2005
Total Posts : 323

Posted 7/3/2006 11:26 AM (GMT -5)

Do you recall a time when you had a serious FLU?

They are now believing that there is an autoimmune aspect to FM, CFS, CFIDS. And I think they are looking in the right direction

I think exposure to a frequently used chemical can cause it (Fatigue would be autoimmune hemolytic anemia ...) 2-butoxyethanol poisoning

Fatigue hides out for a long time. Ask your doctor to look for some of these things

Don't doctors say they don't know what the fatigue is?

Glyconutrients are at the forefront for real help

AND of course, focusing on good nutrition

Minimize medications as much as possible, especially if they do no good (Adds to your chemical load)

Doctors who are toxicologists emphasize avoiding chemicals if you've had too much exposure to any chemical. Most especially AVOID 2-butoxyethanol (old name Ethylene Glycol Monobutyl Ether) or whatever ails you can get WORSE (believe it or not) & many other, more serious autoimmune syndromes can show up for you and for your children

Dr Rea - Outstanding! Interested in 2-butoxyethanol - Has seen some people from the Exxon Valdez oil spill cleanup who were harmed by it

Also Dr. REG McDaniel - I would follow their protocol for any autoimmune issue, such as scleroderma trial now underway

Why I learned about 2-butoxyethanol - Blood in urine & small-sized RBCs are clues to its harm

Mother Margaret
Registered Member

Date Joined Jan 2005
Total Posts : 323

Posted 7/5/2006 12:34 PM (GMT -5)

moobug said...

Since I posted this original question I have done loads of research and tried lots of therapies, nutritional supplements and I have finally found an answer to my problem.

Unhealthy sleep patterns is definitely related to the fibromyalgia pain. I have medication to use when I have several nights of sleep disturbances. This usually puts me back on track.

Postively the most help has come from the 40 xanthones that are found in the fruit of the mangosteen fruit. This fruit grows in SouthEast Asia.

I think that NO ONE should go outside the USA for help in meds. There are a lot of scams out there ... human growth hormone, and on and on ... once those folks added toxic yellow road paint to give their concoction the right color.

They don't care if its right or not, they just want your money.

Sleep problems that go with FM, CFS, CFIDS is most probably central nervous system damage. Best help, would be glyconutrients, from what I've found. The 1999 Nobel Price was in cell to cell communication.

Who knows, maybe they are giving you some kind of drug, but if you had autoimmune hemolytic anemia (the fatigue of CFS, FM, CFIDS) ...

sorry, I think you are not getting the help you hope for.

They didn't do the right thing for Hitler (whom I suspect was harmed by the same type of chemical exposure that our Pres FDR was ... from 1917 up to their deaths in 1945 http://www.valdezlink.com/pages/didyouknow-abouthitler.htm

(Because of the hyphen in web page you have to take out some stuff in browser in order to see this web page.)

moldy
Registered Member

Date Joined Jul 2006
Total Posts : 8

Posted 7/18/2006 3:07 PM (GMT -5)

I've had good luck with magnet therapy for fibromyalgia. http://www.worldofmagnets.co.uk/cgi-bin/ushop.pl?id=kmolden this is an excellent site that explains how.

http://www.just-for-you-homeremedies.com

lddi777
Registered Member

Date Joined Aug 2006
Total Posts : 11

Posted 8/14/2006 9:39 AM (GMT -5)

Patricia Kane, PhD of the Haverford Wellness Center has some interesting theories re toxic causes of Fibromyalgia and a treatment that may address underlying causes. Sounds like potentially can cure, or at very least control and help prevent serious relapse. I am researching and considering this treatment myself for F and other concurrent conditions MCS and bipolar disorder. It's worth a look!!!

Zach
Registered Member

Date Joined Oct 2006
Total Posts : 4

Posted 10/17/2006 5:38 PM (GMT -5)

How do you all think the glyconutrients from some of these glyconutrient suppliers compare?

GlycoWellness Int's Glyconutrients and this glyconutrients supplier Has anyone used either of these brands of glyconutrients before?

Thanks.

Clark

Elsa Grace
Registered Member

Date Joined Oct 2006
Total Posts : 2

Posted 10/31/2006 11:51 AM (GMT -5)

So much research is coming in this days that people suffering from fibromyalgia have real hope of living a good quality of life. Summer of 2005 revealed fibromyalgia is a "neuroendocrine disease" involving the dysfunction of the HPA Axis (hypothalamus - pituitary - adrenal). Also, much research is showing fibro patients have mitochondria dysfunction - Acetyl - carnitine is routinely low in fibro patients which would certainly effect the mitochondria.

Look into Dr.(s) Robert Bennett. Kent Holtorf and J. Teitelbaum for starters. You can also put University of Michigan and Georgetown University in your search engine for information on groundbreaking research. Dr. Daniel Clauw should be included in that list as well.

An excellent website for all things concerning fibromyalgia (plus chronic fatigue syndrome) is Immunesupport.com.
and worth taking a look at.

Hope this helps ....

TLW
Registered Member

Date Joined Jan 2008
Total Posts : 3

Posted 1/28/2008 5:37 PM (GMT -5)

I have had amazing results with an all natural product. After two months of use I became pain free. I discontinued all medications and remain pain and symptom free. I am new here and do not want to break any rules so I won't mention the product by name but if you would like more information please feel free to email me.

TLW

moobug said...

Can anyone share successful treatment for fibromyalgia? Any relative, recent research articles? Thank you Moobug

haileyharris
Registered Member

Date Joined Apr 2008
Total Posts : 4

Posted 4/25/2008 6:54 PM (GMT -5)

Hello everybody,

I have also encountered very much pain of fibromyalgia and it really ruined my life. But at one point, blessing came in.

For you to make feel better like anyone else, start attending to your kids activities again, feeling great and happy with the whole family, and enjoy life to the fullest.

The system that can change your life is.... "Heal Your Body System". This offers long term solutions to your fibromyalgia not just a cover up medication. It gives you the power to cure yourself rather then relying on others to heal you. It gives you the freedom to gain your health back free from the countless medicines you’ve been taking.

To give you more informations about fibromyalgia treatment, feel free to visit our website ridfibromyalgia.com/.

You'll Learn...

* the best diet for fibromyalgia, eat your way to wellness and eliminate your Fibromyalgia symptoms
* which vitamins and supplements for fibromyalgia work to target and reverse the illness
* how to detox your body of built up poison and help itself to heal naturally.
* Effective pain relief through acupuncture for fibromyalgia
* which exercises for fibromyalgia are safe and effective in aiding you through recovery
* which fibromyalgia medicine can make you sick not better, and what can make you better
* how to rid yourself of the pain naturally and take back your life

“The healing power is in your hands.”

Feel free to visit our website: ridfibromyalgia.com/, this is a website that helps people suffering from fibromyalgia or symptoms of fibromyalgia get off the ground and enjoy life pain free. We do this by teaching simple techniques on how to detox, rejuvenate, maintain, and live a life free of this debilitating syndrome.

Mother Margaret
Registered Member

Date Joined Jan 2005
Total Posts : 323

Posted 4/29/2008 10:48 AM (GMT -5)

Elsa Grace said...
Summer of 2005 revealed fibromyalgia is a "neuroendocrine disease" involving the dysfunction of the HPA Axis (hypothalamus - pituitary - adrenal). Also, much research is showing fibro patients have mitochondria dysfunction - Acetyl - carnitine is routinely low in fibro patients which would certainly effect the mitochondria.

"fibromyalgia, MS, chronic fatigue syndrome and autoimmune diseases in general are caused ..." I think the real chemical of harm for these is ethylene glycol monoBUTYL Ether (aka 2-butoxyethanol) and this exposure is the best match for what the 'gulf war syndrome vets came down with

This chemical won't do just one thing - If you only have one health issue, and/or your parent doesn't have 'the odd assortment of CFIDS symptoms,' don't suspect 2-butoxyethanol poisoning.

Compare EVOS Robin to Gulf War Vet Donny

THE Fatigue AIHA of CFIDS is proof EGBE is the root cause

I'm convinced that metabolic features (changes in cholesterol and lipid profile, changes in glucose uptake and cell use, mitochondrial diseases and so on) are among main underestimated issue of 2-BE," says a French journalist

Help?

"One of the most important discoveries in health and disease of the last 10 years or so, may be that the production of the sugars that the body requires to form glycoproteins (cellular messenger molecules) is quite ATP intensive, ADP intensive, vitamin/mineral dependant, and enzyme dependant."

Would Nutrition for Cells help?

Rituxan for AIHA? & autoimmune issues,

including cancers that must be autoimmune to some degree also, if caused by EGBE

'civilian gulf war syndrome' aka CFIDS

haileyharris
Registered Member

Date Joined Apr 2008
Total Posts : 4

Posted 5/7/2008 11:22 AM (GMT -5)

Hi everyone,

I'm one of many people suffered much pain of Fibromyalgia. I went from doctor to doctor to look for answers regarding my condition. It's really difficult to lead a normal life having this and others thinking I'm crazy.

Until I found an answer. As I go searching informations, find any solutions that will help me, also with the help of my doctors, I found this system that really helps me. I would never trade what I have learned; it’s been a great blessing. The good news is the research has already been done so you don’t have to spend countless hours at the library and on the Internet just to search for informations.

The system is.... the "Heal Your Body System". This offers long term solutions to your Fibromyalgia not just a cover up medication. It gives you the power to cure yourself rather then relying on others to heal you. It gives you the freedom to gain your health back free from the countless medicines you’ve been taking.

“The healing power is in your own hands.”

In addition, You'll Learn...

* the best diet for Fibromyalgia, eat your way to wellness and eliminate your Fibromyalgia symptoms
* which vitamins and supplements for Fibromyalgia work to target and reverse the illness
* how to detox your body of built up poison and help itself to heal naturally.
* Effective pain relief through acupuncture for Fibromyalgia
* which exercises for Fibromyalgia are safe and effective in aiding you through recovery
* which Fibromyalgia medicine can make you sick not better, and what can make you better
* how to rid yourself of the pain naturally and take back your life

I hope this helps you...

Hailey Harris has spent thousands of hours learning how to rid fibromyalgia from her life and how to help others do the same. She developed Ridfibromyalgia.com - www.ridfibromyalgia.com to help Fibromyalgia sufferers of all levels to achieve their optimal health goals.

divebuddy
Registered Member

Date Joined May 2008
Total Posts : 87

Posted 5/8/2008 9:50 AM (GMT -5)

I have had cfs and fibro for 6 yrs starting at 35, my 12 yr old daughter got it at the same time, mother got it as a child and grandmother had it, also a cousin on both sides. so there is a strong genetic predisposition in my family. i don't know the cause i just know the triggers. i have tried many things, there reallly is no cure. i go to newton wellsley hospital to the chief rheumatologist in mass. his wife has had it for 15-20 yrs he still is not certain what it is. they have meetings once a yr from doctors around the world. they are thinking the immune system is constantly on, trying to fight infection that is not there, because of that u feel like u have the symptoms of infection (one theory), the other is endocrine. if it is endocrine and the hypothalamus is damaged or not putting out hgh like it should that would cause fatigue and all the other symptoms, i am going to try gh soon. if i start feeling better i will let u know, i have tried so many things i am too young to feel like this. so see what happens but it is expensive so i will try for like 3 months. cross your fingers.

divebuddy
Registered Member

Date Joined May 2008
Total Posts : 87

Posted 5/27/2008 12:20 PM (GMT -5)

hi i posted last that i was going to try hgh because in cfs trials it showed a 60 to 70% improvement, and usually the IGF-1 levels are low in cfs and fibro. i got my blood work back and mine are high. i am kind of baffled, so no hgh trial for me, it is definitely not endrocrine system for me, i think maybe autoimmune. actually taking too much hgh lowers the immune system. i don't know if any of you get an abnormal amount of cold sores, but that is the immune system letting viruses through. every person has the antigens of thousands of viruses iin their bodies, but because of the immune system they are held at bay. if the immune system lowers they surface, like herpes simplex and hep, and Epstein barr (mine has shown as active on some blood work and on others shows inactive on others, even though i have already had mono many years ago. . so another dead end. there is someone that responds to this board that sells the amazing jungle juice. don't fall for it, that was kind of like the noni juice when it came out it cured everything from cancer to athlete's foot fungus. these people prey on people with chronic illness to make a buck. i really detest them.
anyway, if there are any doctors that do look at these boards that would have a theorie of my last revelation and want to respond i would appreciate

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