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psyfauve
Registered Member

Date Joined Mar 2007
Total Posts : 3

Posted 3/22/2007 9:59 AM (GMT -5)

My 14 yr old daughter has the following symptoms:

osteopenia (bonescan diag)

hydromyelia in spine (MRI diag)

joint pain (at time severe enough to necessitate wheelchair) - remissions and flare-ups

low blood pressure (75/40)

erosions in jejunum (video pill, ab ct diag)

low body temp (97)

underweight (5', 80 pounds)

under growth potential (genetic potential 5'5)

underperforming academically (at 5 had 133 iq, at 11 had 115 iq, currently c-d student in basic classes despite effort

brain fog, poor short term memory

Hashimoto's thyroiditis

cat allergy (all other IgE normal, awaiting IgG results)

fibromyalgia tender points 2 years ago but not presently

blood tests normal

echocardiogram normal

celiac markers ruled out

lyme disease ruled out by western blot

Is taking many supplements for osteopenia and joint pain along with multivitamin.

any ideas???????????

thanks - any input appreciated

DDye
Forum Moderator

Date Joined Jan 2002
Total Posts : 361

Posted 3/22/2007 10:01 AM (GMT -5)

Although forum members will give you their thoughts, a diagnosis can only be provided by a physician.

psyfauve
Registered Member

Date Joined Mar 2007
Total Posts : 3

Posted 3/31/2007 12:46 PM (GMT -5)

I'm good with thoughts.

Mother Margaret
Registered Member

Date Joined Jan 2005
Total Posts : 323

Posted 3/31/2007 12:47 PM (GMT -5)

psyfauve said...

My 14 yr old daughter has the following symptoms:

osteopenia (bonescan diag)
hydromyelia in spine (MRI diag)
joint pain (at time severe enough to necessitate wheelchair) - remissions and flare-ups
low blood pressure (75/40)
erosions in jejunum (video pill, ab ct diag)
low body temp (97)
underweight (5', 80 pounds)
under growth potential (genetic potential 5'5)
underperforming academically (at 5 had 133 iq, at 11 had 115 iq, currently c-d student in basic classes despite effort
brain fog, poor short term memory
Hashimoto's thyroiditis
cat allergy (all other IgE normal, awaiting IgG results)
fibromyalgia tender points 2 years ago but not presently

blood tests normal

echocardiogram normal

celiac markers ruled out

lyme disease ruled out by western blot

Is taking many supplements for osteopenia and joint pain along with multivitamin.

any ideas???????????

thanks - any input appreciated

I think you could find the same type of patterns with the 'gulf war syndrome' vets and with people with too much exposure to 2-butoxyethanol.

I think it causes autoimmune hypothalamus - my theory

I am checking with a couple dozen people in my town with suspected exposure ... they should all have a subnormal body temp if I am right -

SHORT TERM memory loss is the most noticeable!

I think that is part of the Central Nervous System autoimmune issue/s

if they have dealt with these symptoms for awhile *

& I think glyconutrients would help them or anyone with autoimmune issues

FM is an autoimmune issue as is the core issue after too much exposure to this chemical - so is CFIDS

HELP * *

Help your doctor ... when did these things seem to start up?

Did she have 'flu-like' symptoms?

Or was she a premature baby?

In that case could you share more about you and your husband & what work you did or whether one was in the military or a war?

Why did you take an interest in 2-butoxyethanol? - Blood in urine & small-sized RBCs are clues to its harm

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