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The Life Extension Foundation Forums > LEF Public Forums > Disorders/Diseases > Chronic Fatigue Syndrome Immune Dysfunction (CFID)  Forum Quick Jump
 
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Lindab
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   Posted 10/19/2008 6:05 PM (GMT -4)    Quote This PostAlert An Admin About This Post.
Has anyone had any experience with the Immune Recovery Clinic in Atlanta, Georgia?  I understand they have a 75%-90% improvement rate when treating the symptoms of CFIDs. Also, if anyone has had treatment resulting in any type of recovery from CFIDs symptions, would you please share where you received treatment and the protocol? Thank you. Lin
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RLL
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   Posted 10/29/2008 10:46 AM (GMT -4)    Quote This PostAlert An Admin About This Post.
Hi Lindab,

Personnaly, I haven't needed treatment for CFID, but I have close experience with several other people who have received substantial to complete help in overcoming CFID. The protocol involved nutritional improvement using probiotics, Coenzyme Q10, magnesium, B-complex, carotenoids, flavonoids, stress relievers, strengtheners for the adrenal glands and immune boosters. If you would like more info including quantities and potency reach me via e-mail: richnmitz@verizon.net
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Mother Margaret
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   Posted 11/4/2008 5:18 PM (GMT -4)    Quote This PostAlert An Admin About This Post.

I think the issues that CFIDS, CFS, FM, ME

are dealing with ... has nothing to do with a weakened immune system,

quite the contrary

 

An over active - under effective immune system,

 

because it has become AUTOIMMUNE

 

What do doctors recommend for an AUTOIMMUNE immune system?

 

What I use for autoimmune issues that are showing up in me (I do not have 'the fatigue' however)

 

are glyconutrients

 

My thoughts on 'tired with NO energy'

There are 3 links on this page ... web pages that I write to express my ideas


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nic_lambert
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   Posted 1/21/2009 6:09 PM (GMT -4)    Quote This PostAlert An Admin About This Post.
Hi Lin,
I'm in a similar situation and am looking at the clinic. Your post is a few months old I was wondering if you had decided to go or had found any useful information. Thanks a bunch. Nic
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Mother Margaret
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   Posted 2/1/2009 5:03 PM (GMT -4)    Quote This PostAlert An Admin About This Post.
I'm wonder whether gamma globulin would help.
 
I was posting about Jett Travolta's death after seizure as being advanced anemia after almost dying at age 2 (exposure to the harmful component in carpet cleaning ... being diagnosed then with Kawasaki Syndrome).
 
And a couple of replies mentioned their child having the same and being administered gamma globulin ... and that years later they are normal kids ... no serious side effects.
 
That reminded me of a comment that ITP (autoimmune action on the platelets) which was similar to autoimmune action on red blood cells (AIHA or IMHA which I suspect for the fatigue in CFIDS, CFS, FM) was helped by administering gamma globulin and that the platelets for some unknown reason thrived.
 
what is the anemia/fatigue?
 
help for autoimmune issues? ... even CFIDS, CFS, FM ... ANEMIA
 
 
I also tried to share everything of help & understanding to vet, Charlie
 
I've heard that when cancers show up & there are multiple autoimmune issues ... that Rituxan helps the anemia and cancer, if it shows up, too.  Especially NHL that goes with AIHA of 2-butoxyethanol or BUTYL exposure
 
Exposure looks like the flu.
Do you recall a serious flu?

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Lindab
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   Posted 4/2/2009 5:18 PM (GMT -4)    Quote This PostAlert An Admin About This Post.
In response to nic_lambert:
I went on bioidentical hormone replacement therapy (pellets) in October, which made a tremendous difference in my cfids, but I felt the balance was wrong, so I added the Women-to-Women protocol in February. After 18 years (literally), the fog has lifted from my brain. I will be seeing Dr. Eric Braverman in a couple of weeks. Lindab
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